Caregiving for Someone with Down Syndrome and Dementia

October is recognized as Down Syndrome Awareness Month. It’s a time to recognize and raise awareness about Down Syndrome and to celebrate and educate others about issues that concern caregivers and individuals who deal with Down Syndrome. We’re focusing on caregiving for individuals who have both Down Syndrome and Dementia.

Down Syndrome Increases the Risk of Dementia

Adults with Down Syndrome are susceptible to the same conditions and diseases that any non-intellectually disabled aging adult would experience. A key difference though is that adults with Down Syndrome experience premature aging. These adults will show physical signs of aging about 20 to 30 years ahead of others. An adult with Down Syndrome may have symptoms of Dementia that occur in their mid-40s, while those who do not have the diagnosis do not usually show symptoms until they are in their late 60s.

WebMD reports that it estimated about 25 percent of individuals with Down Syndrome will experience symptoms of Dementia. That’s about three to five times more than adults without Down Syndrome. Early aging of the brain is one factor that could be caused by the extra gene for those with Down Syndrome. However, more research is needed to determine if this is in fact true.

How Does Dementia Affect Adults with Down Syndrome?

Adults with Down Syndrome may experience different symptoms than commonly associated with Dementia. Instead of memory loss, there may a change in activities of daily living. An adult with Down Syndrome may also experience seizures, even if the person has never had them before. There may be behavior or personality changes. Some decline in fine motor control or work productivity.

Many times, adults with Down Syndrome will not self-report their concerns. It is important for Caregivers to be alert to identify changes they may notice in their clients. A medical professional will have to make the diagnosis, but the doctor should also know the history of the client and the of memory loss and functioning. Many symptoms of Dementia can also be related to other conditions, such as hearing or vision loss, sleep apnea or a low thyroid function.

It is important to develop a strong support network that includes medical specialists, social workers and support for family and friends when working with a client or family member who has Down Syndrome.

Home Helpers of Drexel Hill offers care for seniors and home care options for adults with Intellectual Disabilities. Contact us for more information on how we can help you care for your loved one and yourself.

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Why Seniors, Their Families, and Their Caregivers Should Garden Together

The relationship between a caregiver and a senior can often stay in place on the roles each other plays: one person meeting the physical needs of another. While this dynamic gets the job done, it can hinder the benefits each person may receive from moving beyond simple roles and creating a closer connection. How can they do this? A simple way to unite seniors, caregivers, and even family members is through gardening.

Benefits to Seniors 

Seniors can feel depressed or feel less willing to participate due to the limits of their age and health. Gardening takes these restrictions into account. Those who cannot kneel and dig can grow potted plants on a windowsill. Those who can’t cut and weed can do the watering instead. There’s a task for everyone regardless of ability.

Gardening gives seniors a sense of purpose and allows them to provide what they receive – care. It also offers the following opportunities:

  • Communing with nature
  • Appreciating growth
  • Moving the body
  • Thinking creatively
  • Solving problems
  • Staying organized
  • Feeling like part of a team

Seniors then can enjoy the fruits of their labors as a healthy meal or a pretty bouquet of flowers on the table. This process can lead to improved mental, emotional, and physical health. Even a senior who lives in an apartment or community without a garden can enjoy having indoor plants.

Benefits to Family Members

As aging progresses for a senior, family members may be unsure of activities that can still be performed. Family members are also taking into account the physical limitations. Fortunately, gardening can be done no matter what limitations the senior may face. Gardening is an easy way to include everyone of all generations and capabilities. It can become a family hobby and encourage visits and involvement with seniors.

Benefits to Caregivers

The job of a caregiver is demanding and challenging and can take its toll over time. Caregivers and seniors can enjoy taking a break from everyday tasks like light housekeeping or running errands to spend time providing companionship through gardening. This is also a benefit for caregivers to relax and take part in a pleasurable endeavor while still maintaining their professional roles. It also allows them to get close to those they serve, building communication, compassion, trust, and appropriate friendship.

Caregivers Who Garden

These positive effects of gardening are not reserved for a select few but are within reach for all. At Home Helpers of Drexel Hill, we understand the value of gardening and other nonconventional activities for seniors, family members, and caregivers. Our caregivers are prepared to participate in different hobbies to bring hope and healing to seniors and their families. Contact us to find the right caregiver match for loved ones.

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Three Things to Know About Planning for Your Financial Future

You may have planned for retirement, but have you given the same amount of attention to what happens to your finances after retirement? Most people do not realize they should continue to review their financial picture to manage their assets, monitor their income, and protect their interests for the years to come. Seniors especially can benefit from an annual financial review or meeting with an elder law attorney to make sure they have a financial plan for the future. Three aspects of financial planning to consider are:

  1. Medical Expenses 

As you probably already know, Medicare may not cover your medical costs for hospital or physician care, outpatient services, or prescriptions. Changes to Medicare and supplemental plans can happen every year, so it makes sense to review your beneficiary information, assets, and insurance to account for any new laws or regulations. While you consider how to manage those expenditures, you should also look over your revenue sources to be sure you are managing your funds efficiently.

  1. Understand Your POA

Having a traditional power of attorney may not offer enough protection for your senior. Other options to consider:

  • Financial POA, for issues directly related to your income and resources
  • Durable POA, which allows someone to act on your behalf if you become incapacitated
  • Medical POA, for medical decisions when you cannot make them yourself

These specific powers of attorney are also different than an advanced directive, such as a living will, or a do not resuscitate order. The truth is that you can and should have all of these documents prepared before you need any of them.

  1. Find an Elder Law Attorney

When a senior needs assistance navigating the many possibilities for financial planning, they can turn to an elder law attorney for guidance. This specialized field of law is devoted to geriatric issues and can include financial planning as well as legal services. A good elder law attorney can advise you or your loved one on retirement assets management, medical, life, and long-term care insurance, legal documents, and more to ensure that your nest egg is not only safe for your estate, but also that needs are met during golden years.

Planning to effectively manage the situations that may arise can protect not only your finances, but medical needs as well. Home Helpers can be part of your team to assist you and your loved one with care, companionship, resources, and other services to preserve your dignity and quality of life. We have resources for guidance in financial and legal aspects of your life.  Contact us to learn more about what we can do for you and your family. 

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Alzheimer’s Caregiving Tips for Dark Winter Months

Being a senior caregiver is a responsibility that knows no season. Each season brings its own range of challenges that caregivers have to be aware of in order to take adequate precautions. There are lots of ways that the winter season in particular can present problems to people living with Alzheimer’s, and especially for those who experience sundowning. Addressing the ways that winter challenge senior family members is wise, and remember – you can always depend on Home Helpers for assistance during this important time of year.

What Is Sundowning?

Sundowning is a particular dimension of Alzheimer’s disease that some of those who have been diagnosed experience. It is characterized by a marked distress, confusion, anxiety, and disorientation during sunless hours of the day. Other seniors experience a heightened degree of sleepiness during the dark portion of the day, which can interrupt the schedule that caregivers maintain for the well-being of their family member.  Mornings and evenings can become increasingly challenging as a result of sundowning, which can be prolonged as a result of the increased number of dark hours during winter months.

Seniors with Alzheimer’s are likely to depend on visual clues to successfully navigate their environment; the changing daylight hours can complicate the tasks that can normally be taken care of independently. Dressing, light cleaning, and taking medication can all be complicated because of decreased visibility. 

Tips for Managing Sundowning

There are some simple, practical ways to address sundowning in people with Alzheimer’s:

  • Open curtains to capture the fullness of available daylight
  • Place additional lights in the homes and switch them on earlier
  • Install motion detectors to switch lights on in rooms and hallways

If your family member tends to spend time outside, adding strips of reflective material to shoes, hats, jackets, and other garments will help improve their visibility during low light.

Changing Weather and the Effect on Seniors

The winter brings several seasonal changes, including falling temperatures. Even in locations where temperature does not fluctuate to a large degree, the decreasing daylight hours can contribute to sundowning symptoms. The increased confusion and disorientation can complicate caregiver tasks and make the day harder on everyone.

Although sundowning can occur at any time of year, the increased hours of darkness during the winter months can make winter especially challenging for many caregivers. Even though it gets dark earlier, caregivers may have an inflexible work schedule that does not allow for effective sundowning management each day. Home Helpers offers specialized Alzheimer’s training to our caregivers. Please call us if you or someone you know are in need of assistance with non-medical options.  

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Caring for Those with Intellectual Disabilities

Acting as a caregiver can be challenging under any circumstance, but what if you are providing care for an adult with intellectual disabilities? Aging disabled individuals may need more specialized care than a family member is able to provide. If you are feeling overwhelmed by the many responsibilities you have as a caregiver for a person with ID, you may be relieved to know that help is available. This information can help you understand the unique needs of intellectually disabled people as well as the challenges of caring for them.

Special Circumstances

In the past, people with developmental or intellectual disabilities typically had a shorter life span. With more advanced medical treatment and care available nowadays, this population has been able to live fuller, happier lives. While aging people with ID may live longer, they also tend to have more health problems than those who are not intellectually disabled and may need more care to accommodate their capabilities. Some of the factors that can affect the quality of life for disabled adults can include:

  • Chronic health conditions
  • Dental disease
  • Obesity
  • Limited or impaired communication ability
  • Hearing and vision impairments
  • Decrease in physical strength and vigor
  • Limited or declining mental and emotional capacity

As their abilities decline, you may not be able to offer the changing complexity of care without assistance. This is nothing to be ashamed of. Seeking professional companionship or caregiving can take reduce the stressors while maintaining the health and wellbeing of the individual. Often times an additional caregiver can be a key person in noticing changes that may not be seen by a family member who is caring for the person at all times.

Call for Backup

The most important thing for an intellectually disabled person is quality care, whether it is provided by you or a skilled caregiver who has the experience and training to attend to your loved one. You should ensure their desire for friendly social interaction, routine, sense of helping and belonging, and much more as their care needs change. You may also choose to continue to be the primary caregiver and rely on a professional care aid to assist you with respite care, activities of daily living, personal hygiene, medication management, and companionship. Services can be tailored for community residential settings as well as for home health care. You can breathe a sigh of relief because your loved one can receive personalized assistance from sincere, compassionate, and knowledgeable caregivers.

Here to Help

Home Helpers is more than just senior care. We have the knowledge and training to assist with those who are intellectually disabled and are committed to making life easier. Home Helpers can provide caregiving to relieve your stress and reduce your responsibilities without sacrificing the safety, health, or happiness of your loved ones.

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Should You Take Your Loved One’s Caregiver on Vacation?

Vacation is a time to sit back and unwind with family and friends including senior relatives. Taking care of senior relatives can make vacation difficult if the added responsibility of a loved one hinders your time to relax. The difficult decision has to be made whether or not to bring them along. This also includes how to ensure they are properly taken care of so that you have plenty of opportunities to enjoy your time off.

Care Options at Home

The first decision to make is whether or not to take your loved one with you on vacation. There are many considerations to make, one of which is options for care while you are out of town. This might include:

  • Hiring hourly in-home care
  • Hiring a live-in caregiver
  • Asking a trusted relative or friend to fill in as needed
  • Taking advantage of respite care (temporary care at a nursing home or assisted living facility)

Care Options on the Road

Families enjoy spending time together and this also includes inviting a senior relative to join the family vacation. When you take your senior relative with you on vacation, it is important to make plans to prepare for their additional needs which may include bringing along their caregiver. You want to be able to enjoy your vacation as much as everyone else, and having an extra hand from a caregiver is a beneficial way to enjoy time with them and know they are being well taken care of.

There are many benefits to bringing along your regular caregiver with you on vacation. For one, your loved one already has a rapport with the person, and he or she knows what to do to ensure your loved one does not encounter any issues while away from home. Other reasons include:

  • Fewer responsibilities for you and your other family members
  • More time to enjoy the vacation and take advantage of less stress
  • Assistance with ensuring the senior is safe at all times with 1:1 care

If your loved one is still fairly independent and you are traveling with others who can help, you might be able to travel without the assistance of a caregiver.

How to Decide

There are many factors to consider before you make the ultimate decision on whether or not to take a senior’s caregiver with you when you go on vacation. These include:

  • Current health of your loved one
  • Type of assistance needed
  • Vacation location and itinerary
  • Additional people willing to help while you are on vacation

At Home Helpers, we provide several different in-home care services for seniors, ranging from companion care to respite care. We can assist with taking care of your loved one at home while you enjoy your vacation or can provide caregivers to travel to your vacation destination.

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Summer Skin Care Tips for Senior Citizens

With the weather warming up, many seniors are eager to spend more time outside basking under the sun’s glow. We at Home Helpers of Drexel Hill encourage seniors to spend more time outside, but we also urge taking precautionary measures to be protected from the sun. Be sure to pack a few expert tips whether you’ll be going outside in the sun yourself, or if you’re are a caregiver.

Keep Plenty of Water Nearby

One of the best things caregivers can do for seniors is to be sure they have a ready supply of water on hand. While everyone is susceptible to dehydration, seniors are especially vulnerable, mostly because they don’t have the same ability to retain water as people who are younger in age. Long drives, lengths of time spent outside, and walking around all require plenty of H2O.

Pay Attention to Medication

Some prescriptions alter how a person feels when exposed to the sun, making it essential that seniors or their caregivers check labels on medications. Reaching out to a primary care physician for more information before heading outside is also stressed. Medications are sensitive to the sun and heat in general. Some medications should not be stored at high temperatures, such as those inside a car parked in direct sunlight. The effects from heat exposure can alter the medication dosage.

Wear Plenty of Sunscreen

Sunscreen with an SPF of at least 30 is highly recommended for seniors who enjoy spending time outside. One thing to stress is the reapplication of sunscreen every two hours. Besides sunscreen, wearing the right colors and fabrics also goes a long way in protecting seniors from the effects of the sun while staying comfortable. Light and natural fabrics are often the best choice for anyone venturing outside during the warmer and sunnier months of the year.

Shades Are Essential

No matter your age, wearing proper eyewear during the summer is a great way to take preventative measures for sun exposure. For seniors especially, eye irritation and even vision loss are common due to overexposure from the sun. Sunglasses designed to deflect UV rays are vital. It is important to stay in the shade when possible.

 

Keep Skin Well Moisturized

Staying in the air conditioning is a cool idea in the heat, but the cold air can also harm the skin. Overexposure to the cold air can dry out the skin making it necessary for seniors to constantly moisturize their skin. If the air conditioning is always necessary then be sure to wear a quality moisturizer that keeps skin smooth, soft, and well-hydrated.

Home Helpers of Drexel Hill encourages taking preventative measures to avoid situations that can become unnecessary. For even more suggestions on what the elderly community can do to stay cool and comfortable in the summer heat, please do not hesitate to reach out to our office.     

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4 Things You Need to Know about Glaucoma

January is Glaucoma Awareness Month, and of all awareness campaigns, senior care providers need to pay attention to this one. Glaucoma is the most common cause of avoidable blindness in the U.S., and more than 3 million Americans have it—yet half of those may not even realize it! With an aging population, researchers just expect that number to keep growing. But early diagnosis can help!

1. Glaucoma Symptoms?

Glaucoma has no symptoms in its early stages, which makes it hard to catch unless your senior care regimen includes a regular visit with the eye doctor. This is particularly alarming because a person with undiagnosed glaucoma can lose up to 40 percent of their sight before realizing there’s a problem. While glaucoma’s damage to the optic nerve can be slowed or stopped if diagnosed, damage already done cannot be reversed—not yet, anyway.

2. Risk Factors for Glaucoma

People of African, Hispanic and Asian descent carry a higher risk for developing glaucoma, as well as any senior over the age of 60. Diabetics and people with a family history of glaucoma also run a higher risk. If you are a caregiver for someone with these risk factors, urge them to see their eye doctor regularly so they can catch and treat the disease before more of their vision decreases.

3. How Glaucoma Damages Sight

Both types of glaucoma (angle-closure glaucoma and primary open-angle glaucoma) damage the optical nerve through increased pressure within the eye. Some other disease processes (like those of diabetes) can also cause extra pressure within the eye. Regardless of the cause, this excess pressure damages the optic nerve, which is responsible for carrying images from the eyes to the brain. Your eye doctor can measure eye pressures and detect damage to the optical nerve.

4. What the In-Home Care and Family Caregiver Can Do about Glaucoma

Schedule a regular eye exam for yourself or for the seniors in your family. The good news is that once glaucoma is diagnosed, there are several treatment options that can slow and prevent further vision loss. Depending on your individual situation, medications and/or surgery can help you preserve your remaining sight and prevent the disease from progressing.

Talk with your Home Helpers caregiver about glaucoma and how you can help preserve your sight today.

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Is It Time to Talk To Your Doctor About Thyroid Cancer?

Nurse and elderly patient

Caring for our elderly loved ones can be challenging even when they can clearly describe their symptoms and the illness is easily diagnosable and treatable. A disease like thyroid cancer, which sometimes presents few if any distinct or severe symptoms, can make things even more difficult. The good news is that once discovered, most forms of thyroid cancer are very curable. With September being Thyroid Cancer Awareness Month, now is an opportune time to discuss the risk factors and symptoms that let us know when it’s time to call a doctor and talk about the possibility of thyroid cancer.

Who gets thyroid cancer?

Thyroid cancers can affect just about anyone, but the American Cancer Society does identify a number of factors that may increase the risk:

Age: Most thyroid cancers affect people of broad spectrum of ages, although the risk does increase with age. Some forms of thyroid cancer, especially the extremely rare and aggressive anaplastic carcinoma, are found almost exclusively in elderly patients.

Gender: While the reasons are still unknown, females are significantly more prone to developing thyroid cancers than men.

Genetics: As with most cancers, a person with a family history of thyroid cancer is always at a slightly higher risk of developing the disease. One form however – medullary thyroid cancer – is especially linked to genetics and can be connected to inheriting an abnormal gene about 80% of the time.

Radiation: Many of us don’t need to worry about having received unhealthy doses of radiation, but this can be a factor for seniors. Modern x-ray technology delivers extremely low amounts of radiation and most links between thyroid cancer and common procedures like dental x-rays and mammograms have been debunked. However, seniors may be at increased risk if they were exposed to higher doses as children, as prior to the 1960s x-rays were used to treat various childhood ailments ranging from tonsillitis to acne. Higher-dosage radiation therapies such as that for Hodgkin’s lymphoma can also increase the likelihood of thyroid cancer.

When should I call the doctor?

If you are worried about thyroid cancer or any other medical condition for any reason, a call to your physician is never a bad idea. However, the Mayo Clinic identifies a few signs to look out for. They recommend making an appointment with your doctor if you or your loved ones have a lump that you can feel through the skin on your neck, voice changes or hoarseness, difficulty swallowing, neck or throat pain, or swollen lymph nodes.

While we should always be vigilant and proactive when it comes to any cancer, it’s important to remember that thyroid cancers are among the most treatable and curable forms of cancer. Provided we detect the issue and seek medical advice promptly, the prognosis is very positive.

About Home Helpers

Home Helpers is the region’s premier provider of non-medical caregiving services for seniors, people coping with a lifelong illness or disability, and those recuperating from a recent surgery or hospitalization. We don’t just take care of our clients; we plan for them, using our comprehensive and customized Home Helpers Total Care Plan™. Home Helpers is proactive, not reactive, and offers a flexible, affordable continuum of care that changes as our clients’ needs change. We tailor our care plans to our clients’ unique needs, and tap our extensive network of referral resources relevant to every aspect of care. The professionals at Home Helpers are sensitive to all factors impacting a person’s ability to function safely and independently in their homes.

To learn more about Home Helpers, call us at (484) 730-2201

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